Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131 Sa\u011fl\u0131k Hizmetleri Genel M\u00fcd\u00fcrl\u00fc\u011f\u00fc Otizm, Zihinsel \u00d6zel Gereksinimler ve Nadir Hastal\u0131klar Daire Ba\u015fkan\u0131 Murat G\u00fcl\u015fen, yapt\u0131klar\u0131 \u00e7al\u0131\u015fmalarla SMA tan\u0131l\u0131 hasta say\u0131s\u0131n\u0131n azald\u0131\u011f\u0131n\u0131, tan\u0131 konan hastalar\u0131n tedavi s\u00fcre\u00e7lerinin ba\u015far\u0131l\u0131 \u015fekilde ilerledi\u011fini belirtti.TBMM Engelli Bireylerin Sorunlar\u0131n\u0131 Ara\u015ft\u0131rma Komisyonu’nda konu\u015fan G\u00fcl\u015fen, SMA’n\u0131n geri d\u00f6n\u00fc\u015f\u00fcms\u00fcz bir sinir h\u00fccre kayb\u0131 ve harekette s\u0131k\u0131nt\u0131ya yol a\u00e7an hastal\u0131k oldu\u011funun alt\u0131n\u0131 \u00e7izerek “\u00d6zellikle SMA Tip 1 i\u00e7in hayat\u0131n ilk 3 ay\u0131nda y\u00fczde 80 sinir h\u00fccresi harabiyeti oluyor. Mevcut tedaviler de d\u00fcnyadaki asl\u0131nda bu n\u00f6ron kayb\u0131n\u0131 sadece durdurmay\u0131 hedefliyor. Tedaviye en h\u0131zl\u0131 ba\u015flayan \u00fclkelerdeniz. Tip 1 hastalar\u0131; ya\u015fayamaz iken erken ba\u015flad\u0131\u011f\u0131m\u0131z tedavi sayesinde y\u00fcr\u00fcyen hastalar haline geldi. SMA klinik kalite g\u00f6stergelerini \u00e7al\u0131\u015ft\u0131k, t\u00fcm SMA hastalar\u0131m\u0131zla ayn\u0131 kalitede tedavi, ilaca eri\u015fiyor mu diye bak\u0131yoruz. Nerede eksik varsa d\u00fczeltmek i\u00e7in \u00e7al\u0131\u015fmalar\u0131m\u0131z\u0131 planlayaca\u011f\u0131z” dedi. SMA ile ilgili ebeveynlere tarama yap\u0131larak \u00f6nleyici tedbirler al\u0131nd\u0131\u011f\u0131n\u0131 kaydeden G\u00fcl\u015fen, taramalar sonucunda bireylerin \u00fccretsiz \u015fekilde t\u00fcp bebek tedavisine y\u00f6nlendirildi\u011fini anlatt\u0131.’3’L\u00dc TARAMA UYGULANIYOR’Murat G\u00fcl\u015fen, erken tan\u0131, otizm tarama ve takip program\u0131 kapsam\u0131nda aile hekimliklerinde \u00e7ocuklara 3’l\u00fc tarama yap\u0131ld\u0131\u011f\u0131n\u0131 s\u00f6yledi. Takip tarama program\u0131yla bug\u00fcne kadar 2.7 milyon \u00e7ocu\u011fa ula\u015f\u0131ld\u0131\u011f\u0131n\u0131 aktaran G\u00fcl\u015fen, “Tarama yap\u0131lan \u00e7ocuklar\u0131n y\u00fczde 2.5’inde aile hekimleri risk saptad\u0131. Risk saptanan \u00e7ocuklar\u0131n y\u00fczde 6’s\u0131 otizm tan\u0131s\u0131 ald\u0131, y\u00fczde 13’\u00fc otizm d\u0131\u015f\u0131 m\u00fcdahale edilebilir, dikkat eksikli\u011fi, hiperaktivite bozuklu\u011fu gibi ek tan\u0131lar ald\u0131. Y\u00f6nlendirdi\u011fimiz her 5 \u00e7ocu\u011fun 1’inde otizm veya m\u00fcdahale edilebilen ba\u015fka tan\u0131 saptan\u0131p erken m\u00fcdahalesi ba\u015flat\u0131ld\u0131. Bu konuda planlad\u0131\u011f\u0131m\u0131z faaliyetlerde aile hekimli\u011fi performans sistemine de entegrasyonu sa\u011flayarak taraman\u0131n y\u00fczde 100’e ula\u015fmas\u0131 hedefliyoruz” dedi.KAYNAK: SABAH<\/p>\n","protected":false},"excerpt":{"rendered":"
Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131 Sa\u011fl\u0131k Hizmetleri Genel M\u00fcd\u00fcrl\u00fc\u011f\u00fc Otizm, Zihinsel \u00d6zel Gereksinimler ve Nadir Hastal\u0131klar Daire Ba\u015fkan\u0131 Murat G\u00fcl\u015fen, yapt\u0131klar\u0131 \u00e7al\u0131\u015fmalarla SMA tan\u0131l\u0131 hasta say\u0131s\u0131n\u0131n azald\u0131\u011f\u0131n\u0131, tan\u0131 konan hastalar\u0131n tedavi s\u00fcre\u00e7lerinin ba\u015far\u0131l\u0131 \u015fekilde ilerledi\u011fini belirtti.TBMM Engelli Bireylerin Sorunlar\u0131n\u0131 Ara\u015ft\u0131rma Komisyonu’nda konu\u015fan G\u00fcl\u015fen, SMA’n\u0131n geri d\u00f6n\u00fc\u015f\u00fcms\u00fcz bir sinir h\u00fccre kayb\u0131 ve harekette s\u0131k\u0131nt\u0131ya yol a\u00e7an hastal\u0131k oldu\u011funun alt\u0131n\u0131 […]<\/p>\n","protected":false},"author":0,"featured_media":24741,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20],"tags":[1167,116],"class_list":["post-24740","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-politika","tag-saglik-bakanligi","tag-siyaset-haberleri"],"_links":{"self":[{"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/posts\/24740","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/comments?post=24740"}],"version-history":[{"count":1,"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/posts\/24740\/revisions"}],"predecessor-version":[{"id":24742,"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/posts\/24740\/revisions\/24742"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/media\/24741"}],"wp:attachment":[{"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/media?parent=24740"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/categories?post=24740"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/daktilock.com\/index.php\/wp-json\/wp\/v2\/tags?post=24740"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}